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Re: [Wellness] Pat's message.
Title: Message
Hi Pat
-
All
great advice from Bunny and Karen....
Could
you clarify something? Is your risk so high because a gene test has shown you
have the "breast cancer gene" BRCA1 or 2?
The
numbers for the success of preventative mastectomy may be different
(better/worse) depending on whether you have the gene or
not.
Also -
with the extremely high rate of different cancers in your family I would wonder
about environmental factors...if you live or have lived in some high risk
areas....
Good
luck!
Sarah
Pat,
I am
sorry that you are faced with such a challenge. Bunny gave some great
advice. In addition to that I thing you need to speak with the surgeon
(who you should ask a good amount of questions) and the oncologist and
find out what the research shows as far as prophylactive mastectomy
success. I understand that you can still get breast cancer without
breasts. This is a big surgery and recovery. I have been
considering removing my remaining breast for a few years now. It is not
an easy choice. I would hesitate to make this decision based on what
might happen. With your family history you could get a lot of
cancers. How can you best prevent them all? I would add a
radiologist to your group of people to visit as well as your gyn. Get
every valid opinion you can. This is a big step. I'll try to
help the best I can with good access to information. The following links
are all to the National Institute for Health.
Factors Relating to the IncreasedRisk of Breast Cancer and
to Decreased risk of Breast Cancer
This
raised a good question: Would you benefit from taking Tamoxefin?
It also covers Prophylactic ovary removal. It is a great deal of
information but I think some very important information for you. (And
Me)
This
is a lot of information that I think will help you understand exactly what
they are talking about so that when you write up a list of questions to ask
each doctor and you do finally select a good doctor and a good decision you
will feel more condident in your decision. I wish you the very best and
hope you will let us know what you think and decided.
Karen Patterson, Founder of Womens-Wellness.com and a breast
cancer survivor
Hi Pat,
It sounds like you are trying to make a tough
decision. Have you been diagnosed with breast cancer or are you
thinking of taking preventative measures? I wasn't quite clear on that
point.
I do not have any suggestions on the
mastectomy, but I have had breast cancer and several other serious medical
issues. The most important thing I learned is to carefully
check out any doctors that you are dealing with. Sometimes
doctors don't take enough time to do their homework and research
and are too quick to give advice. If I were you, I would
definitely get several opinions from different doctors. Be your own
best advocate and make sure that they are giving you the attention you
need. Make certain that you clearly understand all your options before
you do anything.
I am about your age. My oncologist
suggested a trial drug for my osteoporosis several years ago.
I later learned that I should have never been given the
drug. Now I have a far worst debilitation bone disease from that
medicine. I'm not saying not to trust doctors, Pat. But be sure
and check them out carefully before taking there advice.
Warm Regards,
Bunny
----- Original Message -----
Sent: Saturday, November 19, 2005
1:50 PM
Subject: [Wellness] breast cancer
---mastectomy
HELP
I need some feed back.
My oncologist advised me to go to a genetisist...excuse the spelling.
since there is so much cancer on my mothers side..My mother had cancer and
had a mastectomy and later died with lung cancer, her sister who has a
twin sister died from breast cancer, the other twins youngest son was
diagnosed at about 29 years of age with brain tumor, my 1st cousins
daughter died at 32 after having brain turmor at about 28, my youngest son
was diagnosed at 16 mo with rare type luekemia and surpassed the very low
odds back then..he is now 32..
so with all that I did go to the genisist. and later the Dr. there
came in (after meeting with the person interviewing me) and sat down and
told me the chances of my cancer coming back is 95%.So I should consider
having a double mastectomy. I know it is in God's hands. I later had
an apt. with oncologist and he didn't say much except for they should NOT
have talked to me about that. So hear it is several months later and I am
seriously thinking about having it done now..I will be 59 in Dec. and
still single after 25 yrs so its not like I will get married any time
soon..
Please would like to get some feed back on weither this is
recommened..anyone had that choice to make? I have 2 friends that had both
removed when diagnosed..one was a nurse and she told the Dr to remove both
and give her radiation even though he did not prescibe that along with her
chemo..she also had a hysterectomy this made her fill safer..
Waiting to hear from my friends..
Pat
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