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Re: [Wellness] Pat's message.



Title: Message
Hi Pat -
 
All great advice from Bunny and Karen....
 
Could you clarify something? Is your risk so high because a gene test has shown you have the "breast cancer gene" BRCA1 or 2?
 
The numbers for the success of preventative mastectomy may be different (better/worse) depending on whether you have the gene or not.
 
Also - with the extremely high rate of different cancers in your family I would wonder about environmental factors...if you live or have lived in some high risk areas....
 
Good luck!

Sarah
 
 
 
 
-----Original Message-----
From: wellness-bounces@womens-wellness.com [mailto:wellness-bounces@womens-wellness.com] On Behalf Of Karen Patterson
Sent: Monday, November 27, 2006 10:50 AM
To: Bunny Phillips; wellness@womens-wellness.com
Cc: achord1946@aol.com
Subject: Re: [Wellness] Pat's message.

Pat,
 
I am sorry that you are faced with such a challenge. Bunny gave some great advice. In addition to that I thing you need to speak with the surgeon  (who you should ask a good amount of questions) and the oncologist and find out what the research shows as far as prophylactive mastectomy success.  I understand that you can still get breast cancer without breasts.  This is a big surgery and recovery.  I have been considering removing my remaining breast for a few years now.  It is not an easy choice.  I would hesitate to make this decision based on what might happen.  With your family history you could get a lot of cancers.  How can you best prevent them all?  I would add a radiologist to your group of people to visit as well as your gyn.  Get every valid opinion you can.  This is a big step.   I'll try to help the best I can with good access to information.  The following links are all to the National Institute for Health. 
 
Factors Relating to the IncreasedRisk of  Breast Cancer  and to Decreased risk of Breast Cancer
This raised a good question:  Would you benefit from taking Tamoxefin?  It also covers Prophylactic ovary removal.  It is a great deal of information but I think some very important information for you.  (And Me)
 
 
 
This is a lot of information that I think will help you understand exactly what they are talking about so that when you write up a list of questions to ask each doctor and you do finally select a good doctor and a good decision you will feel more condident in your decision.  I wish you the very best and hope you will let us know what you think and decided. 
 

Karen Patterson, Founder of Womens-Wellness.com and a breast cancer survivor

 
 
 
 
 
 
-----Original Message-----
From: wellness-bounces@womens-wellness.com [mailto:wellness-bounces@womens-wellness.com]On Behalf Of Bunny Phillips
Sent: Monday, November 27, 2006 9:22 AM
To: wellness@womens-wellness.com
Subject: Re: [Wellness] Pat's message.

Hi Pat,
It sounds like you are trying to make a tough decision.  Have you been diagnosed with breast cancer or are you thinking of taking preventative measures?  I wasn't quite clear on that point.
I do not have any suggestions on the mastectomy, but I have had breast cancer and several other serious medical issues.  The most important thing I learned is to carefully check out any doctors that you are dealing with.  Sometimes doctors don't take enough time to do their homework and research and are too quick to give advice.   If I were you, I would definitely get several opinions from different doctors.  Be your own best advocate and make sure that they are giving you the attention you need.  Make certain that you clearly understand all your options before you do anything. 
I am about your age.  My oncologist suggested a trial drug for my osteoporosis several years ago.  I later learned that I should have never been given the drug.  Now I have a far worst debilitation bone disease from that medicine.  I'm not saying not to trust doctors, Pat.  But be sure and check them out carefully before taking there advice.
Warm Regards,
Bunny
----- Original Message -----
Sent: Saturday, November 19, 2005 1:50 PM
Subject: [Wellness] breast cancer ---mastectomy

HELP
I need some feed back.
My oncologist advised me to go to a genetisist...excuse the spelling. since there is so much cancer on my mothers side..My mother had cancer and had a mastectomy and later died with lung cancer, her sister who has a twin sister died from breast cancer, the other twins youngest son was diagnosed at about 29 years of age with brain tumor, my 1st cousins daughter died at 32 after having brain turmor at about 28, my youngest son was diagnosed at 16 mo with rare type luekemia and surpassed the very low odds back then..he is now 32..
so with all that I did go to the genisist. and later the Dr. there came in (after meeting with the person interviewing me) and sat down and told me the chances of my cancer coming back is 95%.So I should consider having a double mastectomy. I know it is in God's hands. I later had an apt. with oncologist and he didn't say much except for they should NOT have talked to me about that. So hear it is several months later and I am seriously thinking about having it done now..I will be 59 in Dec. and still single after 25 yrs so its not like I will get married any time soon..
Please would like to get some feed back on weither this is recommened..anyone had that choice to make? I have 2 friends that had both removed when diagnosed..one was a nurse and she told the Dr to remove both and give her radiation even though he did not prescibe that along with her chemo..she also had a hysterectomy this made her fill safer..
Waiting to hear from my friends..
Pat
 
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