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RE: [Wellness] Post-Chemo Symptom



Bunny,
 
I have been on Neurontin for 3 years.  It helped in the beginning but now I need something different or more.  I can't believe that people are experiencing such problems with neurologists.  I go in there with demands and get action.  They have gotten me disability for life so some of them must be worth it.  I've read that Neurontin has been widely prescribed for reasons its not meant to deal with and I think that's what I have.  I'm going back next week to ask for a diffeent prescription.  The article I read said it is for seizures but is being widely used as an anything cure.  I really feel the only correct doctor that will help with Neurathapy is a Neurologist but it seems we need to select them very carefully.  Don't be afraid to try more than one.  I'll send an update next week after meeting my NEW neurologist. 
 
Karen
-----Original Message-----
From: Bunny Phillips [mailto:bunny01@earthlink.net]
Sent: Thursday, August 26, 2004 5:19 PM
To: Karen Patterson
Subject: Re: [Wellness] Post-Chemo Symptom

PS to letter to Judy.
I went to several neurologists and they didn't do anything but put me on Neurontin.  I even drove to a big city and got even less help there. B
----- Original Message -----
Sent: Thursday, August 26, 2004 11:32 AM
Subject: RE: [Wellness] Post-Chemo Symptom

Judy,
 
I would ask for a referral to see a Neurologist. Sorry for this additional challenge.
 
Karen
-----Original Message-----
From: wellness-admin@womens-wellness.com [mailto:wellness-admin@womens-wellness.com]On Behalf Of Lyle and Judy
Sent: Thursday, August 26, 2004 12:20 PM
To: Wellness@womens-wellness.com
Subject: [Wellness] Post-Chemo Symptom

Does anyone know what might help neuropathy (numbness, tingling, intermittent pain) in the toes and feet that is a side effect of chemo? 
 
I finished Adriamycin (doxorubicin)/Cytoxan (cyclophosphamide), followed by Taxotere (docetaxel) 2 years ago and have been suffering with this ever since.  My oncologist says it's just a common side effect that shouldn't get any worse.  But gradually it has gotten significantly worse and now I'm having times when it is quite sharply painful, especially in the afternoon and night.   
 
I'm wearing special shoes with orthodics, and I've had them re-checked.  There must be something I can do!  And I have a fear that because the size of the affected area and my discomfort have increased, that it will just keep encompassing more area of my foot/body and continue getting more painful over time.  Has this happened to any of you? 
 
I would appreciate any suggestions.   ----Judy

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