Karen's High Dose Chemo Diary
In the Hampton
To: wellness <
Subject: In the Hampton
From: Harry Patterson <
Date: Sun, 07 Feb 1999 06:35:47 -0500
Well we are out of the hospital and in to the Hampton Inn. This starts the next phase of Karen's treatment. At the hospital we were given a new 3 ring binder that explains some of the do's and don'ts:
DO - wash your hands often, drink 6-8 glasses of water (yeah if you can keep it down), eat small frequent meals, check sell by dates, record your progress (see below), shower daily, take your temperature every 4 hours, exercise by walking,
DON'T/AVOID - eat raw anything including vegetables, salads, etc., go out in public places, wear make-up, drink alcohol, be around smoke, swim or use sauna, young children with recent vaccinations,
Also in the 3 ring binder are two charts that we have to fill out. The first is used to track the medication she must take which consists of 10 different pills (antibiotics, nausea, pain, etc), oral rinse and inhalants. The second is a record of her temperature and intake/output. In addition, she was given a pouch that contains a portable IV devise to dispense Heparin (an anti clotting medication).
We are beginning to settle in to this routine, but remembering to write everything down isn't second nature yet. Karen is still fairly nauseous and hasn't been able to eat a regular meal yet. They say that will come back slowly with time. I am to never leave her for more than short periods of time. When I bring her to the clinic each day is when I have some time to run errands, do wash and get any rest I might need. She will be getting a variety of liquids, nutrients, blood transfusions, medications, etc over 2-6 hours. I'll help Lynn with the routine when she gets here Tuesday. Karen is very cognizant and will help her as well with the routine.
Today, (Sunday) she will get her Stem Cells back that were collected two weeks ago. These will take between 10-14 days to Graft and until then her ability to fight infection is substantially reduced. After receiving her cells she will excrete a strong odor from that comes from the substance that helps protect the cells when they are frozen, sounds like a good time to do errands :-)
Have to get going. Karen is to be at the clinic for 7:30AM to start the day and it's 6:30 now.